“We” are the Quality of Life Technologies Lab (QoL Lab). QoL Lab is part of the University of Geneva (UNIGE), Switzerland.
Our website address is http://qol.unige.ch.
Read more about the organization of CACHET and the people responsible at http://qol.unige.ch/qol-lab/.
The QoL Lab operates the mQoL Lab app platform. mQoL Lab is used by researchers to collect, store, and manage data for research purposes. The cloud-based services are operated by the University of Geneva.
The legal entity responsible for processing your personal data is:
Université de Genève
Centre Universitaire d’Informatique
7, route de Drize
Contact details for UNIGE’s data protection officer are:
L’Université de Genève
24 rue du Général-Dufour
CH – 1211 Genève 4
Tel.: +41 (0)22 – 379 71 11
As a data controller, the QoL Lab is committed to giving the utmost attention to the security and protection of your privacy. The QoL Lab processes your personal data in compliance with applicable privacy and personal data laws according to the European General Data Protection Regulation (GDPR).
All data collected by the mQoL Lab app is done as part of a Research Study (“Study”). A Study will always have a researcher who is responsible for the Study (“Researcher”).
Participation or enrolment (“Enrolment”) in a Study is always voluntary and you can leave the Study and uninstall the mQoL Lab app at any time and without providing any reason.
When you enroll in a Study, you will be guided or walk through an informed consent flow (“Informed Consent”), which will inform you about:
Before enrolling in a Study in the mQoL Lab app, you need to read, understand, and sign that Informed Consent. The signed informed consent document is stored by the QoL Lab team (either in a physical or digital format).
Depending on the Study you are part of, the mQoL Lab app may collect the following types of data from you:
The Informed Consent for a Study will always list in detail what data is being collected as part of the Study and why (the “Purpose”).
The data collected through the mQoL Lab app is processed by the QoL Lab for the following specific purposes.
We do not share your personal data with anyone unless you give us an Informed Consent to do so.
In the case that a Study wants to share your data with another organization outside UNIGE – for example, a Hospital – a data processing agreement will be made with this organization prior to the start of the Study (“pre-Study”). You will then give your informed consent to sharing your data with this organization as part of the informed consent flow before participating in the Study.
In the case that a Study wants to share your data with another organization outside UNIGE after a Study is finished (“post-Study”), a data processing agreement will be made with this organization. You will then be contacted to give your informed consent to share your data with this organization. If you do not consent to sharing of your data, your data will not be shared.
Your personal data will not be published.
As part of our research, your data will be subject to data processing and analysis, and the result of such analysis will be part of scientific dissemination in academic journals, conferences, and public data sets.
However, any such results will only be published in anonymized formats with no person-identifiable data. Anonymization will be done by statistical aggregation and by removing all person-identifiable data from such research dissemination.
We will keep your data as long as it is relevant to the research purpose of the Study from which it was collected.
You can request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.
The QoL Lab processes data in three places:
Data processed on the smartphone is done using a pseudonym and data is not linked directly to you. No data is stored on the smartphone, except when an internet connection is not available and a local buffer of information is used to store data until upload (being erased from local storage after uploading).
All communication between the smartphone and the Qol Lab server is encrypted.
All data is encrypted on the QoL Lab server.
The QoL Lab server is hosted in Switzerland.
A Study might include data collected from connected devices. Such devices may need the creation of a service account at the device manufacturer (“Third Party”). The device may send the collected data to the Third Party’s service account, from which the QoL Lab will collect it. Examples of such Third Party Service accounts include Withings.
The processing of data from such third parties in the QoL Lab will always be subject to your authorization (using, e.g., OAuth).
The use of a Third Party Service is always voluntary in a Study.